9 days on Xalkori

I've been on Xalkori for 9 days now exactly.  I still experience the visions issues, gastro-intestinal ( heart burn/ burps), constipation, taste changes and now a decrease sense of appetite, which is new.  The vision only bothers me a bit in the mornings and evening.  And so to avoid nausea issues, instead of taking it first thing in the Morning, I take like either at 10 am ish or after lunch and nights. 12 hours apart as I've been instructed. But this 12 hours apart gets tricky as if I take after I eat lunch..then it makes it hard, waking up at like midnight to take it again.  And so, like I guessed,  like yesterday, since I got home from work so late (8:30 ish PM), after a light dinner, reviewing kids homework, reading to kids, I was so tired, I went straight to bed and just forgotten  to take it.  Before I know it, by noon the next day, I finally realized that I had forgotten to take one last night.  Oh well. Can't double it as its a very toxic pill..so, I gotta find a better time so that it's easier to remember.

On another note, I'm noticing a little scratchy patch of itchy rash on my left leg, but it could be due to a little bug bite..I'm not really sure what it is. Hopefully it's not an reaction or indication that I'm allergic to this new treatment.  My energy, alertness, enthusiasm, and endurance is all good and happy to report that I even sense my mind, and my critical thinking skiils seems clearer and sharper these days. Maybe Xalkori is helping and doing it power punch prowness in destroying the cancer cells..at least that's the hope.

The SAMFund Grants & Scholarships, Moving Forward With Your Financial Health: Health Insurance 101: Understanding the System and Your Rights

I found about this while reading about my reading of lung cancer news and research.  It's a wonderful organization to help those who are young adults move forward in their lives after cancer.  I don't qualify for program, however, it is hosting a very informative webinar and has lots of past info on issues like "Moving Forward With Your Financial Health: Health Insurance 101: Understanding the System and Your Rights". More info and sign up for their web innards can be found at http://www.thesamfund.org/pages/news.html.

Latest news and condolences on to my online NSCL fighters

With being so busy, it's taken me a little longer to catch up with my nightly reading, emails, and latest Non Small Cell Lung news. But when I did login to read, it is with heavy heart that I shockingly and sadly learn that my fellow NSCL fighter blogger, Lori Hope and Mike Baker, http://www.mikebakereducation.co.uk/beatingcancer/, have lost their fight against this disease. I couldn't believe it. Its maddening.sadenning. Two wonderful humans, writers, public speakers, did amazing work in bringing more awareness and to research to lung cancer.  I'm at a loss for their family and to society's loss. It makes me realize how quickly life changes, how fragile life is, and how in an instant things can be forever changed or gone. Just like that.  

Hearing of this sudden loss, I, too, pause and like a tidal wave, it hits me hard, that I too, might need to again and again, re- evaluate my priorities of what is important to me. Questions like, should I work or not work, the whys, the digging deeply down under of the purpose of my life, of what I really should do if, like as my doctors say, is the fact remains i have a terminal illness..and it's unfortunate. But,