It's been a little over 3 weeks now since I have not gotten any sort of treatment and I'm just getting really concerned of how my body is dealing with all the cancers that's multiplying by the millions and growing rapidly everyday without treatment. Even though my Dr pre approved for this pill months in advance, there's been lots of red tape in getting this in my hands. And yes, I've been following with this from the beginning since 2 weeks ago when my Dr discussed with me to switch treatment regimen.
At first, my nurse & Dr team said (on Wednesday, 9/12), it's all approved and all I have to do was wait for it to be delivered to my doorstep within a couple of days, latest by Monday 9/17). By Friday, Sept 14 when it didn't arrive, I already placed a call to my nurse thinking perhaps I can pick it at my local pharmacy instead. But they had told me, it's not an ordinary kind of drug or prescription and so it's a required specialty drug that has to be ordered and mailed and so sit tight, it should arrive soon by Monday or Tuesday.
But by Wed morning, Sep 19 when it did not arrive, I started making my own calls...soon enough I was told my insurance provider doesn't even carry that kind of drug and so I had to register or call other providers to like Caremark to try to fill it. After 1 hour, and more calls to my nurse, it was sort of complete. Or at least everything was all handled...however, by Thursday, I received another call stating from my assigned specialty drug case manager of CVS Caremark that they too could not fill it and that I have to call another place like CVS CuraScript again and get the prescription faxed over again!
By then, it was to Fri, Sept 21 and by morning, I was told, they are still trying to process the approvals through my insurance and until that's complete, there's nothing further I need to do to get this shipped to me.. And yes, I was very adamant, and did stressed to everyone, that this drug is super urgent and to please put the highest priority on getting this delivered next day ASAP!
So yup, this whole ordeal is worrisome and I feel so hopeless...I really need to get treatment, fast and furious, like, now!
But, Monday, Sept 24th came and the first thing I did was call my insurance, Caremark and CuraScript to find out what really is the holdup.
Soon enough, after urgent phone calls over and over, I was able to get my insurance to rush approve this and for both places, whether it's CuraScript or Caremark to RUSH this overnight deliver and fulfill it ASAP for me. AND finally...it arrived by Tuesday, Sept 25!! Yay and halleluyah!!
I actually had to track it down and call CuraScript for where it was delivered to and who had signed it off as by 3:30 PM, I still hadn't gotten it...so after some more running around, searching for whoever signed for the mail, I finally got it in my hands..
I am so glad to have this Xalkori now and have already started taken it for 2 days...so far so good. Like usual, life has been hectic and very, very busy for me and my family..the kids are doing well. All 3 kids are doing very well in school and they all really enjoy it. I've met all their teachers, did the back to school night event, and everyday, after work, like routine, I always spend time with each of them with their school work, interacting with them and talking to them to see how each of their day was like.
Now, let's have this drug, Crizotinib (brand name Xalkori) do its miracle and make me all healthy and cancer free soon! Lots of Love.
At first, my nurse & Dr team said (on Wednesday, 9/12), it's all approved and all I have to do was wait for it to be delivered to my doorstep within a couple of days, latest by Monday 9/17). By Friday, Sept 14 when it didn't arrive, I already placed a call to my nurse thinking perhaps I can pick it at my local pharmacy instead. But they had told me, it's not an ordinary kind of drug or prescription and so it's a required specialty drug that has to be ordered and mailed and so sit tight, it should arrive soon by Monday or Tuesday.
But by Wed morning, Sep 19 when it did not arrive, I started making my own calls...soon enough I was told my insurance provider doesn't even carry that kind of drug and so I had to register or call other providers to like Caremark to try to fill it. After 1 hour, and more calls to my nurse, it was sort of complete. Or at least everything was all handled...however, by Thursday, I received another call stating from my assigned specialty drug case manager of CVS Caremark that they too could not fill it and that I have to call another place like CVS CuraScript again and get the prescription faxed over again!
By then, it was to Fri, Sept 21 and by morning, I was told, they are still trying to process the approvals through my insurance and until that's complete, there's nothing further I need to do to get this shipped to me.. And yes, I was very adamant, and did stressed to everyone, that this drug is super urgent and to please put the highest priority on getting this delivered next day ASAP!
So yup, this whole ordeal is worrisome and I feel so hopeless...I really need to get treatment, fast and furious, like, now!
But, Monday, Sept 24th came and the first thing I did was call my insurance, Caremark and CuraScript to find out what really is the holdup.
Soon enough, after urgent phone calls over and over, I was able to get my insurance to rush approve this and for both places, whether it's CuraScript or Caremark to RUSH this overnight deliver and fulfill it ASAP for me. AND finally...it arrived by Tuesday, Sept 25!! Yay and halleluyah!!
I actually had to track it down and call CuraScript for where it was delivered to and who had signed it off as by 3:30 PM, I still hadn't gotten it...so after some more running around, searching for whoever signed for the mail, I finally got it in my hands..
I am so glad to have this Xalkori now and have already started taken it for 2 days...so far so good. Like usual, life has been hectic and very, very busy for me and my family..the kids are doing well. All 3 kids are doing very well in school and they all really enjoy it. I've met all their teachers, did the back to school night event, and everyday, after work, like routine, I always spend time with each of them with their school work, interacting with them and talking to them to see how each of their day was like.
Now, let's have this drug, Crizotinib (brand name Xalkori) do its miracle and make me all healthy and cancer free soon! Lots of Love.
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