Got Chemo last week

Last Wednesday, May 30 I did qualify to get chemo. My good friend, Liz also came along to offer support. As always, I'm just thankful for my good friends who can come along with me at least once a month to keep me company and for moral support. I wasn't even sure I would qualify for it since I've been feeling just a little weak and some anxiety since I've been feeling a little bone, back and right chest achiness everywhere. Perhaps with the announcements of a few fellow lung cancer survivor member's sudden passing, I've been a bit more worried myself. Not only that, since I've been getting more frequent "hot" flashes and especially with the little pain on my right shoulder blade and bones, something tells me that perhaps this chemo regimen may not be effective any longer. So due to these symptoms, instead of waiting until July to do a CT scan, my Dr. has asked me to do one in the next 3 weeks.

ROS1 and ALK Mutations

When I saw my Dr, he mentioned that we're still awaiting mutation results for the ROS1 and possibly another second opinion at re-looking at whether I could have the ALK mutation. Hmm, I really hope and pray that miraculously, I do have one of these lung cancer known genetic mutation so that I can qualify to take the FDA lung cancer treating pill called Crizotinib, brand name Xalkori.  If I have the ROS1 mutation, he mentioned about entering a trial in Southern CA so that I can participate in order to take the same pill, Crizotinib. ROS1 rearrangements tend to occur in younger, non-smoking NSCLC patients and that clinical trials shows that ROS1-positive NSCLC patients may benefit from crizotinib therapy. 

Prayers

 Wouldn't that be a miracle that I can take this pill and become cancer free someday just like many other Lung cancer survivors!? I'll be praying for this miracle, so Lord, God, please bless me with your healing powers, with this miracle recovery. The kids and I pray every night for my recovery, and it's just so endearing and loving..even Emma prays for "Mama's cancer to go away" and that she says, "I need my Mamma, God, I'm only 2 years old and to "please help my Mama get better, please God, thank you God" and then she ends it with "Amen."

3 month follow up brain MRI

My 3 month brain MRI is coming up this upcoming Friday, June 8. I'll have to swing in early to get my MRI and then will see my Brain neurosurgeon doctor afterwards to find out the results from my brain Cyberknife radio-therapy that I had back in March.  I'll try to post results when I find out..let's hope for good news. After that, I'll head right into work.  

Kids starting summer school

The kids are keeping busy with their end of school sessions and then will transition right onto their summer sessions after this coming week. Ethan's still in Kumon, gymnastics, swimming and will be attending 1 week of day camp after kindergarten ends and then will enter his 6 week summer class from 9AM-3PM. Ellen will still continue her Mon through Friday morning preschool from 9-12.  As for Emma, she seems really delighted to attend preschool too and so we're still debating about possibly letting her attend Tues & Thurs from 9AM-12PM..but it may be too soon for her...and the girls still have their Sat dance and Sunday swimming classes too. So yup, they're busy for the summer.

On other note, we're glad to be having one of Jason's student help us on a partial volunteer/pay 1:1 tutoring with Ethan and Ellen with their academics.  She'll be starting this coming week. Thanks to Jason for his help, the kids are so excited to be working with her!  

To all my fellow readers, supporters, cancer fighters, thank you for all your support and keep us in your prayers for good news. As Matt, one of my online lung cancer fighter survivor says in all his emails to me, "Find it, Treat it-Live!" Lots of Love.